Wednesday, March 31, 2010
Monday, March 29, 2010
Saturday, March 27, 2010
Wednesday, March 24, 2010
Friday, March 19, 2010
Wednesday, March 17, 2010
Monday, March 15, 2010
On Friday March 12, we got a call from our Hospice. They had a meeting with the doctors about mom. Based on what they were told by the nurses who visit 3 days a week, they think that it is time to quit all the invasive medications and blood tests that we have been having mom go through. She has been so agitated and sad lately and the nurses picked up on in in the last couple of weeks. It was hard to make a decision like that. After talking to them for a long time, we decided that they are right. Basically, mom is not going to get better. Her mind is really struggling and our goal needs to be to just make her peaceful and happy. That is hard to do when you are shoving pills down her three times a day, taking her blood sugar twice a day, giving her insulin at least once a day, and inviting nurses in to draw blood at least once a week. So as of Saturday, we have cut her pills down to just a few important ones and we no longer check her blood sugar or do insulin. I have to say, she seems much calmer!
- Today we had a hoist delivered to help lift mom. It is so nice to be able to get mom where she needs to be without having to scare her. As part of the progression of her disease, she quit walking about 2 weeks ago and this past week, she became scared to stand. Her mind just cannot relay a message to her legs. You can imagine how scary that would be! I was showing Ann and Joni how the hoist works and Joni said," Gail you are so excited...you are like a kid in a candy store!!" She is right! It has been so scary to try to get mom around and have her legs just go limp on me! I was so afraid of hurting her. Thanks to the hoist, we can fearlessly go from the bed to the wheelchair to the potty! Oh Happy Day!!!!
- We had lots of visitors this weekend! Kira, Rusty, Aunt Shirley, Alma and Dawn came on Saturday. It was a beautiful day so most of us stayed outside and we let a few visitors go back to see mom at a time. She does better visiting with only a couple of people at a time. We got her up later in the afternoon and these are pictures of that visit.
- Shirley came on Sunday and helped Larry while Barry and I went to church. We go to the Wake Forest Ward and really enjoy that time. I loved being there although I miss our ward! It is hard to be a temporary visitor and not be able to get to know some of the people you meet...but they are some sweet people! We do know a few people in the ward that we knew when we lived here before and it is so fun to get reacquainted with them! I love the sunday school teacher!! She reminds me of Whoppi Goldberg! She kept us all laughing so hard and still taught an excellent lesson!
Friday, March 12, 2010
Here are the things I wrote down....
1:30 am "Mess up here- its already messed up. Dont say it, Miss Annie I wanna go home- Keep calling me- uh uh" (falls asleep)
1:35 am "Miss Annie- come in here- this is up here, up here, up here" (sleep) "Let me go home, this is my house, please let us go home'
1:40 am "Miss Annie- me go over yonder. I want to go home. Miss Annie, Miss Annie to come over here. Miss Annie, Miss Annie.
ME:Mom, I with you. I love you.
"All of this up in here"
"I dont want to roll over that way."
ME- "you can stay where you are"
"Happy Happy the day before. Can we go back?"
me- "back where?"
"Up there" (sleep)
1:45 Nothing going on in here
ME: How about going to sleep
I have one every time we go to work on the other thing.
ME: What thing?
The other thing. Let me roll over.
I ROLL HER OVER>2:00
"Turn it over here...Turn it over here." (falls asleep)
"Me and Ann are cold in there. Let me go over here. I can't do that. Miss Annie, Miss Annie, Miss Annie"
"Now are we over here. (Points to mirror) Over there. Me, me, me over there. I'm going over here. Miss Annie...teacher."
I roll her over again and she sleeps...snoring a bit...yahoo!!!
She sleeps until morning. I always hate to wake her up for breakfast but if I don't, she is weak and gets off schedule for her pills. I have to get her up by 8:30 and feed her by 9:00 to make sure she does not get too weak.
Thursday, March 11, 2010
Thursday, March 4, 2010
What a difference! Mom took 3 antibiotics yesterday and today her eye looks and feels so much better. I had the picture of her with the infection on my last blog but Barry thought I should take it off so I did. Anyway, we are on the mend finally with that and she seems to be feeling better. It is so sad to see how confusing the world is for her. She did get out of bed today for all three meals but she is having trouble with walking today. She really has to think about putting one foot in front of the other. It is a shouffle kind of a walk. Eating has become very confusing too. We have to make sure she has food in front of her when she sits at the table and she does fine.
Ann and Larry P. and Barry and I are going to the beach tomorrow! (Thanks for the use of the beach house Rusty and Kira!!!) We are excited to get away but I also feel nervous about leaving. It is only 3 hours away so it will be ok. We need to get away.
Today I had my hair cut and colored. I really had the "skunk" style going. A gray streak down the part line. Ann came over and stayed with Annie and mom. I love the way the girl did my hair and it feels so good to feel a little less frumpy!!! I honestly only wear makeup on Sundays for church and have just been quickly running the brush through my hair in the morning. Poor Barry must think he married a slob! Ill try to be better about that.
I love blogging! It has been so good for me to get my feelings out and this is such a fun way to do it. Please know that I am doing fine and though this is hard, I love being here. My sister and I are really enjoying our time with mom. Ann comes nearly everyday and I know it is because she, like myself, is just wanting to cherish every moment that we have with our special mom.
Barry helps me get mom up in the morning and that has been a special time too. My brother, Larry comes every weekend and it has been fun to spend time with him. My sister Shirley came last saturday and sunday and mom enjoyed seeing her and her sweet daughter Rachel. I have a brother Steve who has not been able to come down but he calls and checks on mom. We are really trying to pull together. What if we had not decided to come when we did! It makes me sad to think of all these special times with mom and my siblings that I would have missed!
Wednesday, March 3, 2010
Tonight I found this picture of mom and dad. They look so happy! Mom lost some of that spark in her eyes when dad died so very many years ago. I need to keep reminding myself about that incredible reunion they will have someday. For now...we will just keep loving mom and giving all we have to keep her happy! (PS...Marilyn, I have had you and your mom in my thoughts so much today! Love ya!)